RIGHT TO HEALTH IN CASE OF ‘RARE DISEASES’: A CALL FOR CSR INITIATIVES

Abstract

Despite the government's steadily expanding support to healthcare, the issue of Rare Diseases remained mostly ignored for a long period. Subsidized pharmaceuticals for the treatment of patients suffering from rare diseases were likewise uncommon. These subsidies are critical for residents suffering from rare diseases, as the bulk of these patients come from economically disadvantaged backgrounds. Since a very long time a type of conflict was happening ahead of Indian courts finding government's notice and fiscal participation towards these 'Rare Diseases'. India has one of the lowest levels of public health financing on the globe, with the country's public health care system receiving only 1.26 percent of total GDP. The lacking support in political figures, for example a total absence of any form of law on rare diseases was voiced for first time in 2016 when the Delhi High Court mandated Health Ministry to develop a 'National Rare Disease Policy'. Furthermore, corporations should seize this chance to work with the government to improve the identification and treatment of rare diseases. This paper describes the topic of rare diseases and CSR activities that might be developed to guarantee that every Indian citizen has the right to health as mandated by Article 21 of Indian Constitution.